Meagan Kauffman-Jewell

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Madison, Wisconsin, USA pwcf; born 1995 daughter of Heather Kauffman and Ken Jewell

Dannon Baker

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Atlanta, Georgia, USA pwcf August 19, 1974 - June 9, 2002

Rules for being human

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YOU WILL RECEIVE A BODY. You may like it or hate it, but it will be yours for the entire period of this time around. YOU WILL LEARN LESSONS. You are enrolled in a full-time informal school called Life. Each day in this school you will have the opportunity to learn lessons. You may like the lessons or...

Karen Di Nal Chicago, Illinois, USA

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27 August 1967 - 29 August 2000 pwcf survived by her sister Leslie (nocf) and her mom Carol (nocf)

Picture Buttons

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Put your favorite picture of your CF patient on a three inch button. You can choose the slogan, or use the one shown. These buttons are perfect to show your personal support of the CF Foundation and the "Great Strides" walk. The price of each button is $2.50 including shipping and handling within the USA (profits divided evenly between...

“One Heart At A Time” Compact Disk

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"One Heart At A Time" is the title of a moving song written for the CF Foundation by award-winning songwriter, Victoria Shaw, and sung in concert by famous artists. More than 200,000 copies of the song have been sold across the country with proceeds going to the CF Foundation. The low price of this CD single makes it a...

How is CF diagnosed?

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clinical signs "sweat test" amniocentesis (with genetic analysis) chorionic villi sampling (CVS) (with genetic analysis) Diagnosis: based on sweat test with above 60 mEq/L Cl- and either pancreas involvement or recurrent lung infections; genetic testing for mutations; screening of newborns possible with blood trypsin value (Chymotrypsin?). Some clinics (e.g., Yale) are said to routinely perform two sweat tests before...

Digeztive Enzyme Supplements

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Contents: Why Are They Needed? Recommended Dosages Danger of High Dosages Abdominal Problems and generic enzymes (5/97) Why Are They Needed? The basic defect in CF which produces abnormal mucus secretions also blocks the ducts and tubules of the pancreas and prohibits the excretion of certain digestive enzymes into the intestines where food is broken down by these enzymes and passed in the form of...

Main table of contents

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The Main Table of Contents for the Handbook is shown below. The appendicies are a very large and important part of the Handbook and have a separate Appendicies Table of Contents which you can reach by clicking on that item below. FORWARD ADMINISTRATION WHAT IS CF? HOW IS CF DIAGNOSED? WILL THE CHILD HAVE CF? WHAT TREATMENTS ARE USED? NUTRITION DIGESTIVE ENZYME SUPPLEMENTS PHYSICAL THERAPY AEROSOLS ORAL MEDICATIONS INTRAVENOUS MEDICATIONS PROCEDURES/TECHNIQUES EQUIPMENT DIFFICULT TO...

Cystic fibrosis-friendly school

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With the beginning of the school year, on September 4, a nationwide social educational campaign was launched under the slogan" A school friendly to patients with cystic fibrosis " prepared by the Polish portal dedicated to the genetic disease cystic fibrosis. Breath Of Life The aim of the social campaign and the accompanying website MukoSzkola.pl there is awareness among Poles of...