CYSTIC-L Photo Archives

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Ever wonder what the people look like on the other end of that computer? Take a look at the CYSTIC-L Photo Archives -- just click "Photos" on the Cystic-L homepage. Remember to check back! New photos are being added often. Want to be included? Click here for directions!  

Alcohol And CF

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The mucus production which causes the scarring of the pancreas also acts on the liver and is called cirrhosis. How much the liver is affected varies greatly from individual to individual. However, if your liver is affected obviously consuming alcoholic beverages will hasten existing damage. Alcohol is also known to depress the respiratory system. Drinking to excess will not only...

PHYSICAL THERAPY

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Contents: Chest Percussion and Postural Drainage High Frequency Chest Compression (vest) Flutter Positive Expiratory Pressure (PEP) Mask Autogenic Drainage Exercise Chest physiotherapy (CPT) is a vital part of the treatment regimen for people with Cystic Fibrosis (CF). CPT is used to remove secretions from the lungs thereby reducing airway obstructions. The thick, viscous secretions are difficult to expectorate and are very damaging to the airways. New...

Helping Siblings Cope With CF

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I have been meaning to respond on the topic of the effect of CF on siblings in a family for quite a few days. I can't even remember now who was asking about how to deal with the other non-CF siblings. At any rate, this is a topic that is of interest to me. Having a chronic illness and...

Difficult To Treat Microbes

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Contents: About Bacterial Resistance to Antibiotics Help in Fighting Resistant Bacteria Definition of B. Cepacia (aka Pseudomonas cepacia) Methicillin-Resistant Staphylococcus Aureus (MRSA) Stenotrophomonas maltophilia (10/97) Aspergillosis About Bacterial Resistance to Antibiotics Apparently most antibiotics are derived from natural sources or modeled after them. This means that resistance factors already exist in nature. In addition to chromosomes, which allow the bacteria to replicate themselves, they also have ring...

That's Great

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From: Torsten Date: 10/9/98 Time: 9:47:41 AM Remote Name: 193.159.76.173 Comments Hi Marty and Ron! You really did a great job with creating and implementing this site. Congratulations!! Submitted: October 09, 1998

Posting Etiquette

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1. Please read CYSTIC-L for awhile before posting (this will let you become familiar with the "tone" of the messages typically posted  here). Most posters strive to be inclusive, not exclusive; tolerant, not  judgmental; reasonable people reasonably disagreeing, not flamethrowers.  Behaving otherwise is very likely to be considered quite rude. 2. Limit on Number of Messages Posted Per Day. A...

Pina Coladas (Kid Version)

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Ask your Mom to help you use a blender, and put all of these things in together: 1 cup cream of coconut 3/4 cup unsweetened pineapple juice 1 tablespoon whole milk (may substitute half and half for milk if tolerated well) 1 can juice packed pineapple 2 cups ice cubes 1 scoop vanilla ice cream 1 packet Scandipharm powder Hold the top...

For My Mother

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(by the daughter of a mother with CF, May 1997) Whose pale fair skin and bright blue eyes light up her life She walks with an oxygen tube following her. She always greets me with " I love you daughter" Her voice brings happiness to my life. Her moans always tell me she's sleeping Her cough lets me know when she...

Neonatal Screening for CF

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A parent said: I just can't stop thinking about how with early knowledge of the diagnosis my wife and I would have understood why this and why that, and that our energies could have been directed appropriately. Receipt of proper guided medical care, fewer wakeless nights, fewer smelly diapers, fewer belly aches, fewer crazed 5 bowl Rice Krispies breakfasts,...