It Looks Great!

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From: Christy Wyatt Date: 10/9/98 Time: 2:26:26 PM Remote Name: 206.23.3.205 Comments What a great site! This is wonderful. I am looking forward to using this site! Thanks for all you hard work. Submitted: October 09, 1998

For My Mother

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(by the daughter of a mother with CF, May 1997) Whose pale fair skin and bright blue eyes light up her life She walks with an oxygen tube following her. She always greets me with " I love you daughter" Her voice brings happiness to my life. Her moans always tell me she's sleeping Her cough lets me know when she...

Books From Libraries & Bookstores

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Popular Taking Cystic Fibrosis to School (by Cynthia S. Henry, Tom Dineen (Illustrator)). Paperback - 32 pages (September 2000) JayJo Books; ISBN: 1891383094   Even though Jessie has cystic fibrosis, she can still attend school and do many of the same things as her classmates. Written from Jessie's perspective, this book explains and educates her classmates about her condition. Jessie explains...

Coping With Death

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Contents: Pain Medication At The Time Of Death (8/97) Could I Have Done More? A Parable A Time To Mourn Pain Medication At The Time Of Death (8/97) Many people with CF die when their CO2 levels in their blood go sky high. This is a calm way to go, and medication is generally not needed in this situation. Other PWCF's benefit from the use...

Tips – Looking Up Old Messages

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To access the archives by date send the following command to [email protected] and follow the instructions you receive via return email.       INDEX CYSTIC-L To search the archives by keyword, (suppose you wanted to read all the posts about l-arginine), send the following command to: [email protected]       SEARCH CYSTIC-L l-arginine You will receive an email back listing each message that contains "l-arginine". Each message...

Description of “Bugs”

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Contents: Alcaligenes Denitrificans subsp Xylosoxydans Aspergillus Burkholderia Cepacia Clostridium difficile Enterococcus strains Haemophilus influenza Micoplasma Virus (5/97) Morganella Morganii Mucoid Pseudomonas aeruginosa Proteus morganii Pseudomonas aeruginosa Pseudomonas cepacia Pseudomonas maltophilia Pseudomonas Mancina Staphylococcus aureus Stenotrophomonas maltophilia Streptococcus pneumoniae Xanthomonas Maltophilia Alcaligenes Denitrificans subsp XylosoxydansThis is a gram negative bacteria which is multi-drug resistant. It is also characterized as nosocomial (hospital caused/transmitted). The literature appears to suggest that it cultures in both nasal and lung cultures. It seems that...

Steve Hoffmann – Photographer – PWCF

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A good-humored and very user-friendly site (even for novices -- computer or photography) featuring amazingly beautiful and throughly professional photographs you can download for free (easy to follow instructions included), or you may purchase high-quality prints suitable for framing. Specializes in landscapes, zoo animals, and insect close-ups. Web Site:  http://www.niftywebs.com/photoweb

Conferences

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There are many conferences held every year throughout the United States and abroad. Many are simply one-day events sponsored by a CF clinic. Three of the more widely known conferences include: Florida Cystic Fibrosis, Inc. sponsors a one-day, annual conference, usually held in September, for CF affected families and adults. For more information, contact Carolyn Shumway, 4711 N.E. 29th Ave.,...

Meagan Kauffman-Jewell

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Madison, Wisconsin, USA pwcf; born 1995 daughter of Heather Kauffman and Ken Jewell

cystic fibrosis pen pal club and support hotline

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From: david wagner Date: 10/21/98 Time: 5:39:23 PM Remote Name: 160.94.237.233 Comments attion all cystic fibrosis patients, hello my name is david wagner and i run the cystic fibrosis pen pal club i have cf im 23 years old and i know how inportant for those with cf to have help when they need it the cystic fibrosis pen pal club has been open...