CYSTIC-L Photo Archives

0
Ever wonder what the people look like on the other end of that computer? Take a look at the CYSTIC-L Photo Archives -- just click "Photos" on the Cystic-L homepage. Remember to check back! New photos are being added often. Want to be included? Click here for directions!  

Symptoms cystic fibrosis – varies greatly in severity

0
Cystic fibrosis a respiratory system Respiratory disorders affect more than 90% of patients with cystic fibrosis, leading to the most serious complications of this disease. Patients suffer from chronic cough, progressive dyspnea and limited exercise tolerance. Thick and sticky mucus settles in the airways and blocks their light, while limiting the possibility of penetration of immune cells and drugs. Such...

User Friendly Homepage for Cystic-L

0
From: Evelyn Cage Date: 10/8/98 Time: 5:54:39 PM Remote Name: 153.37.223.155 Comments I am going to send this to all our Cystic Fibrosis Patients who have email. I am sure they will be impressed. It has class, you out did yourself Ron. Truely a great job. Thanks Ron and all who were involved. Submitted: October 08, 1998

CYSTIC-L Handbook Table of Contents

0
Month/Year of recent updates shown in parenthesis. The Main Table of Contents for the Handbook is shown below.  The appendicies are a very large and important part of the Handbook and have a separate Appendicies Table of Contents which you can reach by clicking on that item below. FORWARD   ADMINISTRATION WHAT IS CF? HOW IS CF DIAGNOSED? WILL THE CHILD HAVE CF?...

You Can Donate Organs & Tissues

0
Organs include heart, kidneys, pancreas, lungs, liver and intestines. Tissue that can be donated include eye, skin, bone, heart valves and tendons. When organs are donated a national system is in place to distribute organs fairly. Today there is a critical shortage of organs and tissues needed for transplants. Nearly 50,000 Americans are waiting for organ transplants while hundreds of...

CF Portraits Calendar

0
CF 'Portraits' Calendar The seller writes: "It's official.  The CF Calendars for 2004 are in and I am taking orders. For those of you who already sent checks, I will be mailing them out." For anyone who may not know about the CF Calendar, allow me to tell you a little about it. I put together a 12 month calendar that...

Traveling With Oxygen

0
Contents: Surface Travel Air Travel (11/97) Surface Travel There is a concentrator that runs off a car battery; built into a Samsonite suitcase, as I recall, though I haven't seen it advertised lately. But rather than purchase an expensive piece of equipment for temporary use, I'd suggest: 1. D or E cylinders. Easy to throw in the back of a car, can be refilled...

CF-Related Diabetes Mellitus

0
by Antoinette Moran, M.D., Department of Pediatrics, University of Minnesota, Minneapolis, MN The bulk of the normal pancreas is composed of acinar cells which synthesize digestive enzymes and the ductular system which transports the enzymes to the gut. Scattered throughout the pancreas are the islets of Langerhans, where insulin is produced by beta cells. In insulin dependent diabetes mellitus (IDDM),...

Separate Clinics For Adults

0
Some thoughts: First of all, transitioning care is appropriate. The psycho-social aspect of transitioning care reflects the truth that people with CF age and require medical care appropriate for their age. It also sends out the hopeful message that people with CF do age. Keeping adults in a pediatric center sends out the subliminal message that this illness is terminal...

Tyler Cruse

0
Cystic fibrosis is an incurable disease-the cause of death is most often respiratory failure. However, its development can be delayed by the use of supportive treatment – complex and multispecialistic. Therapy includes nutritional therapy (high-energy diet), a constant supply of fat-soluble vitamins and appropriate doses of pancreatic enzymes. Prevention and treatment of bronchopulmonary disease should be undertaken, including physiotherapy, mucolytics,...