Hyaluronic acid and cystic fibrosis

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Hyaluronic acid-properties. Increases the comfort of patients with cystic fibrosis (and not only) during nebulization But what exactly is nebulization? A nebuliser is a type of inhaler that delivers medicines directly into the airways. Unfortunately, not all patients tolerate standard nebulization fluids based on sterile sodium chloride. Side effects of nebulisation include severe cough, shortness of breath, chest tightness and...

What do roses have to do with Cystic Fibrosis?

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"65 Roses" is what little children suffering from Cystic Fibrosis call their disease. As the following story illustrates, the words are much easier for children to pronounce.... Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1955 after learning that her three little boys had Cystic Fibrosis. Her duty was to call every civic club, social and...

41. PFT’s Explained For You

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Contents: Short Explanation Long Explanation Another Long Explanation Short Explanation I'm no expert on it, but I am told by my CF doctor that three numbers are looked at in CF: FVC: Forced Vital Capacity. This is the total amount of air you can blow out forcefully. FEV1: Forced Expiratory Volume in 1 second. This is the amount of air you can blow...

Symptoms cystic fibrosis – varies greatly in severity

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Cystic fibrosis a respiratory system Respiratory disorders affect more than 90% of patients with cystic fibrosis, leading to the most serious complications of this disease. Patients suffer from chronic cough, progressive dyspnea and limited exercise tolerance. Thick and sticky mucus settles in the airways and blocks their light, while limiting the possibility of penetration of immune cells and drugs. Such...

The Brass Ring Society, Inc

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The Society has fulfilled dreams of CF kids for thirteen years. CF kids are automatically approved if they have not had a dream from other organizations and are ages 4-17. There are some requests we cannot handle because we are not the richest organization but we handle most. However, while Disney World represents 85% of the dream requests we...

Samantha Heath

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Mutations in the CFTR gene underlie other non-classical forms of CF such as chronic bronchopulmonary disease, sinusitis, nasal polyps, hepatic syndromes and pancreatitis. They are also responsible for the development of congenital bilateral or unilateral absence of spermatic cord (cbavd). This condition is the cause of reproductive failure in about 6% of men diagnosed with azoospermia and about 1-2%...

Cory Vance

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The most common and best studied disease caused by mutations in the CFTR gene is autosomal recessive cystic fibrosis (CF). Clinical signs of severe disease include chronic obstructive pulmonary disease and respiratory tract infections and pancreatic secretory insufficiency. This disease is one of the most common inherited diseases of the white race, in which it occurs with a frequency...

Breanna Hope Lawson

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The role of probiotics in the treatment of cystic fibrosis More and more research results indicate the beneficial effects of the inclusion of probiotics in the treatment of patients with cystic fibrosis. There is information in the literature that taking probiotics reduces the number of pulmonary exacerbations in a patient and thus the number of days a patient spends in...

Abby Knapp

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Supplementation in cystic fibrosis In addition to a properly formulated nutrition plan, appropriate supplementation should be agreed with the patient's physician. We are talking not only about supplementation with fat-soluble vitamins (vitamin A, D, E, K), mineral components (iron, selenium, zinc) but above all pancreatic enzymes and sodium chloride. Supplementation is recommended due to the presence in patients with cystic...

6. Nutrition

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Contents: Medium Chain Triglycerides (MCT) Oil Supplemental Feedings -- Commercial Supplemental Feedings -- Home-made Tube Feeding Why Use an N-G Tube? (11/97) Day or Night Feeding? Are Enzymes Needed? Complete Elemental Formulas Vitamin Supplements Strong Bones and Milk -- Pro and Con Are Soy Products Dangerous? (9/97) Commercial enzyme supplements (e.g., Creon, Pancrease, Cotazym) allow the use of regular diets....