Happy Birthday!!!

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From: Ron T. Date: 10/8/98 Time: 11:59:57 PM Remote Name: 207.172.112.60 Comments Sergio wrote: "I am so happy, because today October 8 it's my birthday, I am now 32 years old. I thank God for letting me live such a wonderful life with c.f. (I was diagnosided when I was 6 months old) and to my wife Maritza who is a strong support for...

CYSTIC-L Lending Library

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To borrow any of these materials, email Ron Trueworthy at: [email protected] with your snail-mail address and a description of the materials you want to borrow. There may be a waiting list for some materials. Borrowers are asked to pay the postage to return the materials or send them to the next borrower. Books (5/97) (5/97) In the Shadow of Illness; Parents and Siblings...

The Hummer's Story

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I am one of 5 children all older. No one has CF but me. I Have two children, girls born 7/11/87 and 5/9/90; their names are Caroline and Bonnie. My children are symptom free but of course they are carriers if they don't have CF. They have not been tested since there are no symptoms of the disease. I...

User Friendly Homepage for Cystic-L

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From: Evelyn Cage Date: 10/8/98 Time: 5:54:39 PM Remote Name: 153.37.223.155 Comments I am going to send this to all our Cystic Fibrosis Patients who have email. I am sure they will be impressed. It has class, you out did yourself Ron. Truely a great job. Thanks Ron and all who were involved. Submitted: October 08, 1998

How To Submit a Memorial

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Please include the following information with the person's photo: Name Where the person lived (e.g., Boston, Massachusetts, USA) Year photo taken Date of Birth, Date Deceased Whether the person had CF or how the person was related to the person with CF (e.g., PWCF, Friend, Mother, Father, Grandmother, Grandfather, etc.) The address of a personal web page if available

Treasure Box

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Our distinctive 65 Roses® Treasure Box, created exclusively for the Cystic Fibrosis Foundation, is a true treasure. A glorious cluster of roses decorates the lid of this keepsake box. Each rose is sculpted in Lenox® fine china and embellished with pure 24 karat gold. Encircling the bottom of the box is a gold rose design border. Once you open...

Team CF Teddy Bear

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Cuddly Teddy Bear Seeks Loving Home This adorable teddy bear was designed exclusively for the Cystic Fibrosis Foundation for volunteers and supporters throughout the country by VTBC! Design®,an import division of the Vermont Teddy Bear Company®. Reserve your TEAM CF Bear today! Each bear is available for a $41.00 donation (including shipping and handling). $25.00 is tax deductible. He is...

Snowman Ornament

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From ornaments to garlands, Christopher Radko is known internationally for producing Christmas glass collectibles that inspire joy and awaken the spiritual significance of the holiday. This limited-edition 65 Roses® Snowman ornament by Christopher Radko, was designed exclusively for the Cystic Fibrosis Foundation. This ornament features a whimsical snowman made of mouth-blown glass and meticulously hand-painted to capture the tiniest detail....

Getting & Printing The Handbook by eMail

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Getting the Cystic-L Handbook via eMail  The CYSTIC-L Handbook (also known as the FAQ) is a 400 page handbook containing a wealth of CF-related information and resources drawn from the collected wisdom and experiances of the subscribers to CYSTIC-L. This document is updated periodically. The Month/Year of recent updates is shown in parenthesis following the section title both in the...

eMailed Research News

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To get the CYSTIC-L RESEARCH NEWS, send the following commands in the body of an email to [email protected] GET NEWS-97 TXT CYSTIC-L GET NEWS-98A TXT CYSTIC-L GET NEWS-98B TXT CYSTIC-L If you only want some of these files, do not list the unwanted files. Some mail accounts impose a limit on the size of messages that can be received (e.g., JUNO rejects messages larger...