Other Printed Resources

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Research on Childhood Diseases
by Entrepreneurs: Hearing Before the Committee on Small Business (5/97), United States Senate, One Hundred Third Congress, second session … Thursday, May 26, 1994 169 pages, Published by U.S. G.P.O. : For sale by the U.S. G.P.O., Supt. of Docs., Congressional Sales Office, ISBN: 0160467209

“CF and DNA Tests: Implications”
Office of Technology Assessment, Congress of the United States; 1992; audience is Members of Congress; it is therefore, while technical, written in a style that anyone can understand if you read it slowly. The goal of the publication is to inform Congress about the current status of CF, gene therapy, genetic testing, and genetic screening. It explains the genetics of CF pretty well. Order from:

The Superintendent of Documents, (Washington, D.C.); 1-202-512-1800, ask for document S/N 052-003-01291-0. Have a Visa/MC ready. The price is $16, softbound, 303 pages. They will mail it to you.

Counseling and CF Carrier Screening
Results of a Survey (OTA) U.S. Government Document. 49 pages; illustrated; 1992. See U.S. GPO address above for ordering information

Screening/Counseling for Genetic Conditions
A Report on the Ethical, Social, and Legal Implications of Genetic Screening, Counseling and Education Programs. (President’s Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioral Research) U.S. Government Document 122 pages; illustrations; 23 cm See U.S. GPO address, above, for ordering information.

“New Therapies for Cystic Fibrosis”
A special supplement of “Chest: The Cardiopulmonary and Critical Care Journal”; Vol 107. Number 2, Feb 1995 Supplement. It contains four excellent review articles on: aerosolized Tobra, DNase, amiloride/UTP, and gene therapy. Articles are quite technical and may be a tough read for some. May be available at libraries (particularly university libraries), or you may contact the editors at 1-708-498-1400, 3300 Dundee Road, Northbrook, IL 60062 and buy a single copy. It’s pretty short (80 pages) but they will still probably charge you $14.

Index Medicus
All citations from Medline are eventually available in the printed index, Index Medicus, which is widely available in medical and science libraries. The big advantage of Medline over Index Medicus is simply that cites are available sooner – about 2-3 months before they’re published in Index Medicus. If people want cites older than 5-6 months, though, Index Medicus is a perfectly reasonable alternative.

The Allergy and Asthma Guide
A twenty-three pg. catalog of product resources put out by: Allergy Asthma Technology, Ltd. P. O. Box 18398 Chicago, IL 60618 1 (800) 621-5545

They carry items such as hypo-allergenic pillows, blankets and mattress casings, HEPA air purifiers, air filters, nebulizers (they offer five types of neb/compressors including the 8 oz. one-piece version which runs on four AA batteries or AC adapter and costs $449.00) and compressors, peak flow meters, cold weather and air pollution masks, mold prevention solutions, dust mite and dander control, some videos and books about asthma and allergies, humidifiers and dehumidifiers, and Control III (a nebulizer cleaning solution) in a neat lil’ ol’ kit for just $19.95.

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