The sick fight for every breath.


Improving respiratory efficiency is key in both cystic fibrosis and idiopathic pulmonary fibrosis, emphasized experts participating in the first debate as part of the #breathe social campaign. The decrease in respiratory efficiency, which is a problem for both people with cystic fibrosis and idiopathic pulmonary fibrosis (IPF), was one of the topics of the first in a series of debates as part of the “Rzeczpospolita” #breathe social campaign.

Another is planned at the end of February. Participants of the debate “Fight for every breath – how to improve the situation of patients with cystic fibrosis and idiopathic pulmonary fibrosis (IPF)” agreed that the situation of Polish patients is worse than the conditions for treating patients from Western Europe or overseas.

Professor Dorota Sands, president of the Polish Cystic Fibrosis Society and head of the Cystic Fibrosis Treatment Center – Clinical Department of Lung Diseases of the Children’s Hospital in Dziekanów Leśny, explained that cystic fibrosis is a multi-organ disease, although in over 90 percent Chronic bronchopulmonary disease is the direct cause of death.

Worldwide, about 80,000 people suffer from cystic fibrosis. people, and in Europe alone there are already 50,000. – It is the only disease I know in which, in the last 50 years, there has been an increase in life from death rates among children to young adults. According to global data, the median life is about 40 years, although in Canada there are 70-year-olds with cystic fibrosis, and local scientists talk about the “gender gap”, i.e. the difference in life expectancy between patients of both sexes – said Prof. Sands.


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