With the beginning of the school year, on September 4, a nationwide social educational campaign was launched under the slogan” A school friendly to patients with cystic fibrosis ” prepared by the Polish portal dedicated to the genetic disease cystic fibrosis.
Breath Of Life
The aim of the social campaign and the accompanying website MukoSzkola.pl there is awareness among Poles of the challenges and problems faced by pupils with cystic fibrosis in Polish schools. The service is also intended to be a compendium of knowledge and a guide for teachers on how to work with a cystic fibrosis patient and their parents.
The action also aims to draw attention to many misconceptions about cystic fibrosis.
Due to similar symptoms, this disease unit is often confused with infectious diseases, which is not true. Cystic fibrosis is a genetic disease. You can’t get it or get it from other people. The sick person does not pose any significant danger to other children in the school.
– However, it happens that a child with cystic fibrosis is ashamed of his illness, and at school he can not count on understanding and help from teachers and students. Thanks to the campaign” School friendly to patients with cystic fibrosis ” we want to change this – says the coordinator of the action, editor-in-chief of the portal Breath of life.
An important part of the campaign is also the promotion of sport and active participation of pupils with cystic fibrosis in physical education classes, by showing their positive impact on the health of people affected by this disease. Sport and physical education in schools for people with cystic fibrosis is an extremely important complement to daily physiotherapy. The benefits of systematic training go directly to the symptoms of this disease unit-adds Sławomir folga, a professional physiotherapist and father of a child with cystic fibrosis.