The genetic disease cystic fibrosis has no cure. One can only try to delay the ravages that are sown in the body of patients through early diagnosis and proper treatment and rehabilitation. In Europe, more than 40 000 children and young adults are affected by cystic fibrosis, and advances in care have enabled them to reach the age of 36-40. In Poland, it is still shorter.
What to do if a diagnosis of cystic fibrosis occurs in our family?
Above all, do not be afraid and hope. Ongoing scientific research may soon lead to the launch of a drug for the treatment of cystic fibrosis. We’re treating her symptomatically today. Constant contact with a specialist, contact with organizations caring for patients and their families will allow you to see that a child with cystic fibrosis can develop well and fulfill at least part of his dreams. The list of centers dealing with the treatment of cystic fibrosis in Poland can be found on the page. There also a lot of information that will help you survive a difficult time.
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There is no effective method of treating cystic fibrosis and preventing the progression of this disease. Cystic fibrosis is a deadly disease. It is assumed that the average life expectancy of a patient with cystic fibrosis in Poland is currently about 35 years and has been gradually increasing for many years. The life expectancy of a patient with CF is influenced by many factors, including the method of treatment and physiotherapy, concomitant diseases, the number and degree of exacerbations.
When cystic fibrosis is diagnosed in children prognosis depends on the general state of health and the degree of severity of the disease.
Can cystic fibrosis be cured?
Treatment of cystic fibrosis focuses on slowing the progression of the disease and asymptomatic treatment, but does not provide a cure for the disease. It consists of pharmacological, rehabilitation and surgical procedures. Inhalations, gene therapy, cytokine administration are also used. Every day is required occlusion, that is, special drainage of secretions from the digestive system.
An additional difficulty is the fact that many chronic medicines are not reimbursed, and the monthly cost reaches 2-3 thousand.
Despite the constant care of the patient, in the end there are always serious complications. In Poland, cystic fibrosis prognosis is still worse than in other European countries, but the average survival time continues to increase.
Although the prognosis of patients with cystic fibrosis is getting better every year, no effective drug has been invented to stop the development of the disease. The treatment available is therefore symptomatic and aims to prolong the patient’s life by slowing down the progression of the disease.